QUALITY DECLARATION - PERINATAL DATA, SUMMARY
Statistics on perinatal deaths presented in this publication are sourced from death registrations administered by the various state and territory Registrars of Births, Deaths and Marriages. It is a legal requirement of each state and territory that all neonatal deaths and those fetal deaths of at least 20 weeks' gestation or 400 grams birth weight are registered. As part of the registration process, information on the cause of death is either supplied by the medical practitioner certifying the death on a Medical Certificate of Cause of Perinatal Death, or supplied as a result of a coronial investigation.
Death records are provided electronically and/or in paper form to the Australian Bureau of Statistics (ABS) by individual Registrars on a monthly basis. Each death record contains both demographic data and medical information from the Medical Certificate of Cause of Perinatal Death where available. Information from coronial investigations are provided to the ABS through the National Coroners Information System (NCIS).
For further information on the institutional environment of the ABS, including the legislative obligations of the ABS, financing and governance arrangements, and mechanisms for scrutiny of ABS operations, please see ABS Institutional Environment.
Perinatal statistics provide valuable information for the analysis of fetal, neonatal and perinatal deaths in Australia. This publication presents data at the national and state level on registered perinatal deaths by sex, state of usual residence, main condition in fetus/infant, main condition in mother and Aboriginal and Torres Strait Islander status. Fetal, neonatal and perinatal death rates are also provided.
The ABS Causes of Death collection includes all perinatal deaths that occurred and were registered in Australia, including deaths of persons whose usual residence is overseas. Deaths of Australian residents that occurred outside Australia may be registered by individual Registrars, but are not included in ABS deaths or perinatal deaths statistics.
Since the 2006 reference year, the scope of the perinatal death statistics has included all fetal deaths of at least 20 weeks' gestation or at least 400 grams birth weight, and all neonatal deaths (all live born babies who die within 28 days of birth, regardless of gestation or weight) which are:
- registered in Australia for the reference year and are received by the ABS by the end of the March quarter of the subsequent year; and
- registered prior to the reference year but not previously received from the Registrar nor included in any statistics reported for an earlier period.
Perinatal data presented in the Causes of Death publication include demographic items, as well as causes of death information, which is coded according to the International Classification of Diseases (ICD). The ICD is the international standard classification for epidemiological purposes and is designed to promote international comparability in the collection, processing, classification, and presentation of cause of death statistics. The classification is used to classify diseases and causes of disease or injury as recorded on many types of medical records as well as death records. The ICD has been revised periodically to incorporate changes in the medical field. The 10th revision of ICD (ICD-10) is used for the 2014 data.
Perinatal deaths data are published annually and released approximately 15 months after the end of the reference period. Perinatal deaths data are included in the Causes of Death, Australia
(cat. no. 3303.0) published outputs.
Causes of death statistics are released with a view to ensuring that they are fit for purpose when released. To meet user requirements for timely data it is often necessary to obtain information from the administrative source before all information for the reference period is available (e.g. finalisation of coronial proceedings). A balance needs to be maintained between accuracy (completeness) of data and timeliness, taking account of the different needs of users. To address the issues which arise through the publication of causes of death data for open coroners cases, these data are now subject to a revisions process. This process enables the use of additional information relating to coroner certified deaths either 12 or 24 months after initial processing. See Explanatory Notes
52-54 in this publication for further information on the revisions process.
Non-sample errors are the main influence on accuracy in datasets such as this which are a complete census of the population rather than a sample. Non-sample error arises from inaccuracies in collecting, recording and processing the data. The most significant of these errors are: mis-reporting of data items; deficiencies in coverage; non-response to particular questions; and processing errors. Every effort is made to minimise non-sample error by working closely with data providers, running quality checks throughout the data processing cycle, training of processing staff, and efficient data processing.
The main sources of non-sample error for perinatal deaths data are:
- completeness of an individual record at a given point in time (e.g. incomplete causes of death information due to non-finalisation of coronial proceedings);
- completeness of the dataset e.g. impact of registration lags, processing lags and duplicate records;
- extent of coverage of the population (whilst all deaths are legally required to be registered some cases may not be registered for an extended time, if at all);
- particular data items which would be useful for statistical purposes may not be collected by jurisdictions where that item is not essential for administration purposes;
- question and ‘interviewer’ biases given that information for death registrations are supplied about the person by someone else. For example, Indigenous origin as reported by a third party can be different from self reported responses on a form; and
- level of specificity and completeness in coronial reports or doctor's findings on the Medical Certificate of Cause of Perinatal Death will impact on the accuracy of coding.
The ABS has implemented a revisions process that applies to all coroner certified perinatal deaths registered after 1 January 2006. The revisions process enables the use of additional information relating to coroner certified perinatal deaths as it becomes available over time, resulting in increased specificity of the assigned ICD-10 codes. See Explanatory Notes
52-54 in this publication for further information on the revision process.
Use of the supporting documentation released with the statistics is important for assessing coherence within the dataset and when comparing the statistics with data from other sources. Changing business rules over time and/or across data sources can affect consistency and hence interpretability of statistical output. The Explanatory Notes in each issue contains information pertinent to the particular release which may impact on comparison over time.
Information on some aspects of statistical quality may be hard to obtain as information on the source data has not been kept over time. This is related to the issue of the administrative rather than statistical purpose of the collection of the source data.
In 2014, the ABS implemented Iris, a new automated coding software product for assisting in the processing of cause of death data, and improved a number of coding practices to realign with international best practice. As part of this, the ABS began a review of its method of coding perinatal deaths which, for the 2013 and 2014 data published in this issue, has meant a change to the method used for assigning an underlying cause of death to neonatal deaths. It is advised that data users refer to the Changes to Perinatal Death Coding Technical Note in this publication, for further information on changes to the perinatal dataset.
The Causes of Death, Australia (cat. no. 3303.0) publication contains detailed Explanatory Notes, Appendices and a Glossary in each issue that provide information on the data sources, terminology, classifications and other technical aspects associated with these statistics.
In addition to the information provided in the commentary, a series of data cubes are also available providing detailed breakdowns by cause of death. The ABS observes strict confidentiality protocols as required by the Census and Statistics Act (1905). This may restrict access to data at a very detailed level which is sought by some users.
If the information you require is not available from the commentary or the data cubes, then the ABS may also have other relevant data available on request. Inquiries should be made to the National Information and Referral Service on 1300 135 070 or by sending an email to firstname.lastname@example.org.