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3414.0 - Guide to Migrant Statistical Sources, 2011 (Edition 2)  
Latest ISSUE Released at 11:30 AM (CANBERRA TIME) 29/03/2011   
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AUSTRALIAN INSTITUTE OF HEALTH AND WELFARE (AIHW)

NAME OF COLLECTION

National (insulin-treated) Diabetes Register (NDR)


OVERVIEW

The National (insulin-treated) Diabetes Register (NDR) is an ongoing database that is the responsibility of the Australian Institute of Health and Welfare (AIHW). It collects information about people who use insulin as part of their treatment for diabetes.

The main objectives of the NDR are to:

    • collect information about new cases of insulin-treated diabetes;
    • where possible and appropriate, provide a sampling frame for scientifically valid and ethically approved epidemiological and clinical studies of insulin-treated diabetes;
    • monitor and report on the incidence of insulin-treated diabetes;
    • provide information to health service providers and planners at Commonwealth, state and territory and local levels; and
    • assist in national diabetes monitoring.

Data are provided by the National Diabetes Services Scheme, administered by Diabetes Australia, and the Australasian Paediatric Endocrine Group who collect information about children with diabetes.


SCOPE

The NDR includes people who began using insulin for management of diabetes from 1 January 1999. These include people with type 1 diabetes and those using insulin to manage type 2, gestational and other forms of diabetes.


DATA DETAIL

Data items collected include:
    • Sex
    • Date of birth
    • State/territory of usual residence
    • Indigenous status
    • Diagnosis date
    • Diabetes type
    • Country of birth
    • Main language spoken at home


GEOGRAPHIC DETAIL

All states and territories.


AVAILABILITY OF DATA AND PUBLICATIONS

Annual incidence reports, other publications can be accessed via the Australian Institute of Health and Welfare web site.

Aggregate, de-identified data may be available on request. Unit record data may be available for research purposes pending clearance by the researcher’s host ethics committee and the AIHW Ethics Committee. For further information see contact details below.


CONTACT DETAILS

National (insulin-treated) Diabetes Register
National Centre for Monitoring Vascular Diseases
Australian Institute of Health and Welfare
Email: diabetes@aihw.gov.au
Phone: (02) 6244 1000
Web: National (insulin-treated) Diabetes Register



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