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4430.0 - Disability, Ageing and Carers, Australia: Summary of Findings, 2009 Quality Declaration 
Previous ISSUE Released at 11:30 AM (CANBERRA TIME) 16/12/2010   
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EXPLANATORY NOTES

INTRODUCTION

1 This publication contains results from the 2009 Survey of Disability, Ageing and Carers (SDAC) conducted throughout Australia from April to December 2009.

2 The aims of the survey were to:

  • measure the prevalence of disability in Australia
  • measure the need for support of older people and those with a disability
  • provide a demographic and socio-economic profile of people with disabilities, older people and carers compared with the general population
  • estimate the number of and provide information about people who provide care to older people and people with disabilities.

3 The survey collected the following information from the three target populations:
  • people with a disability - information about their long-term health conditions, need for and receipt of assistance, use of aids and equipment such as wheelchairs and hearing aids, and participation in community activities
  • older people (i.e. those aged 60 years and over) - information about their need for, and receipt of assistance, and participation in community activities
  • people who care for persons with a disability and older people - information about the type of care they provide, the support available to them, and the characteristics of carers and some of the effects that the caring role has on their lives.

4 The survey also collected a small amount of information about people not in the target populations.


SCOPE

5 The scope of SDAC was persons in both urban and rural areas in all states and territories, living in both private and non-private dwellings (including persons in cared-accommodation), but excluding:
  • diplomatic personnel of overseas governments
  • persons whose usual residence was outside Australia
  • members of non-Australian defence forces (and their dependents) stationed in Australia
  • persons living in very remote areas.


COVERAGE

6 The coverage of SDAC was the same as the scope except that the following (small) populations were not enumerated for operational reasons:
  • persons living in Indigenous communities in non-very remote areas
  • persons living in boarding schools
  • persons living in gaols or correctional institutions.

7 Rules were applied to maximise the likelihood that each person in coverage was associated with only one dwelling and thus had one chance of selection.

8 Usual residents of selected private dwellings and non-private dwellings (excluding persons in cared-accommodation) were included in the survey unless they were away on the night of enumeration and had been away or were likely to be away for seven months or more. This was designed to avoid multiple selection of a person who might be spending time, for instance, in a nursing home, to be eligible for selection there.

9 Visitors to private dwellings were excluded from coverage as the expectation was that most would have their chance of selection at their usual residence.

10 Occupants of cared-accommodation establishments in the scope of the survey were enumerated if they had been, or were expected to be, a usual resident of an establishment for three months or more.


SURVEY DESIGN

11 Multi-stage sampling techniques were used to select the sample for the survey. After sample loss, the household sample included approximately 27,600 private dwellings and 200 non-private dwellings, while the cared-accommodation sample included approximately 1,100 establishments.

12 After exclusions due to scope and coverage, the final sample comprised 64,213 persons for the household component and 9,470 persons for the cared-accommodation component.


DATA COLLECTION

13 Different data collection methods were used for the household component and the cared-accommodation component.

14 The household component covered persons in:
  • private dwellings such as houses, flats, home units and townhouses
  • non-private dwellings such as hotels, motels, boarding houses, short-term caravan parks, and self-care components of retirement villages.

15 Smaller disability homes (with fewer than six persons) were considered to be private dwellings.

16 In this publication, persons in the household component of the survey are referred to as 'living in households'.

17 The cared-accommodation component covered residents of hospitals, nursing homes, hostels and other homes such as children's homes, who had been, or were expected to be, living there or in another health establishment for three months or more.


Household component

18 Data for the household component of the survey were collected by trained interviewers, who conducted computer-assisted personal interviews.

19 A series of screening questions were asked of a responsible adult in a selected household to establish whether the household included:
  • people with a disability
  • people aged 60 years and over
  • people who were carers of persons with a core-activity limitation, living either in the same household or elsewhere, or who provided any care to persons living elsewhere.

20 Where possible, a personal interview was conducted with people identified in any of the above populations. Proxy interviews were conducted for:
  • children aged less than 15 years
  • those aged 15 to 17 years whose parents did not permit them to be personally interviewed
  • those with a disability that prevented them from having a personal interview.

21 People with a disability were asked questions relating to help and assistance needed and received for communication, mobility, self-care, cognition or emotion, health care, household chores, property maintenance, meal preparation, reading and writing tasks, and transport activities. They were also asked questions relating to their computer and Internet use and participation in community activities. Those aged 5 to 20 years (or their proxies) were asked about schooling restrictions, and those aged 15 to 64 years about employment restrictions.

22 People aged 60 years and over without a disability were asked questions about need for, and receipt of, help for household chores, property maintenance, meal preparation, reading and writing tasks, and transport activities. They were also asked questions relating to computer and Internet use and participation in community activities.

23 Persons who confirmed they were the primary carer of a person with a disability or an older person were asked about the assistance they provided, the assistance they could call on, and their employment experience. They were also asked to complete a self-enumeration form which collected information about their attitudes to, and experience of, their caring role.

24 Basic demographic and socio-economic information was collected for all people in the household. Most of this information was provided by a responsible adult in the household.


Cared-accommodation component

25 The cared-accommodation component was enumerated in two stages using a mail-based methodology directed to administrators of selected establishments.

26 The first stage required completion of a Contact Information Form to establish the name of a contact officer, the current number of occupants within the establishment and the type of establishment.

27 The second stage required the nominated contact officer to select occupants in their establishment, following the instructions provided. A separate questionnaire was completed for each selected occupant.

28 The range of data collected in the cared-accommodation component was smaller than in the household component as some topics were not suitable for collection through a paper questionnaire or were irrelevant to those residing in cared-accommodation.


WEIGHTING, BENCHMARKING AND ESTIMATION

Weighting

29 Weighting is the process of adjusting results from a sample survey to infer results for the total population. To do this, a 'weight' is allocated to each enumerated person. The weight is a value which indicates how many population units are represented by the sample unit.

30 The first step in calculating weights for each person is to assign an initial weight, which is equal to the inverse of the probability of being selected in the survey. For example, if the probability of a person being selected in the survey was 1 in 300, then the person would have an initial weight of 300 (that is, they represent 300 people).

31 The responses from persons in the cared-accommodation component and persons in the private dwelling and non-cared accommodation components of the survey were weighted together in order to represent the entire in-scope population.


Benchmarking

32 The weights were calibrated to align with independent estimates of the population, referred to as benchmarks, in designated categories of sex by age by area of usual residence. Weights calibrated against population benchmarks ensure that the survey estimates conform to the independently estimated distribution of the population rather than to the distribution within the sample itself. Calibration to population benchmarks helps to compensate for over or under-enumeration of particular categories of persons which may occur due to either the random nature of sampling or non-response.

33 The survey was benchmarked to the estimated resident population (ERP) in each state and territory, excluding those living in very remote areas of Australia, at 30 June 2009. The SDAC estimates do not (and are not intended to) match estimates for the total Australian population obtained from other sources (which may include persons living in very remote parts of Australia).


Estimation

34 Survey estimates of counts of persons are obtained by summing the weights of persons with the characteristic of interest. Estimates of non-person counts (e.g. days away from work) are obtained by multiplying the characteristic of interest with the weight of the reporting person and aggregating.


Age standardisation

35 Totals presented in tables comparing rates over time are shown as age-standardised percentages. Age standardisation has been undertaken using the direct method (see Technical Note). An age-standardised rate removes the effects of different age structures when comparing population groups or changes over time. A standard age composition is used, in this case the age composition of the 30 June 2001 ERP. The standardised rate is that which would have prevailed if the actual population had the standard age composition. Age-specific disability rates are multiplied by the standard population for each age group. The results are added and the sum calculated as a percentage of the standard population total to give the age-standardised percentage rate. The standardised rates should only be used to identify differences between population groups and changes over time.


RELIABILITY OF ESTIMATES

36 All sample surveys are subject to error which can be broadly categorised as either:
  • sampling error
  • non-sampling error.


Sampling error

37 Sampling error is the difference between the published estimates, derived from a sample of persons, and the value that would have been produced if all persons in scope of the survey had been included. For more information refer to the Technical Note.


Non-sampling error

38 Non-sampling error may occur in any collection, whether it is based on a sample or a full count such as a census. Sources of non-sampling error include non-response, errors in reporting by respondents or recording answers by interviewers, and errors in coding and processing data. Every effort was made to reduce the non-sampling error by careful design and testing of the questionnaire, training and supervision of interviewers, follow-up of respondents, and extensive editing and quality control procedures at all stages of data processing.


INTERPRETATION OF RESULTS

39 Disability is a difficult concept to measure because it depends on a respondent's perception of their ability to perform a range of activities associated with daily living. Factors discussed below should also be considered when interpreting the estimates contained in this publication.

40 Information in the survey was based, wherever possible, on the personal response given by the respondent. However, in cases where information was provided by another person, some answers may differ from those the selected person would have provided. In particular, interpretation of the concepts of 'need' and 'difficulty' may be affected by the proxy-interview method.

41 A number of people may not have reported certain conditions because of:
  • the sensitive nature of the condition (e.g. alcohol and drug-related conditions, schizophrenia, other mental conditions)
  • the episodic or seasonal nature of the condition (e.g. asthma, epilepsy)
  • a lack of awareness of the presence of the condition on the part of the person reporting (e.g. mild diabetes) or a lack of knowledge or understanding of the correct medical terminology for the condition
  • the lack of comprehensive medical information kept by their cared-accommodation establishment.

42 As certain conditions may not have been reported, data collected from the survey may have underestimated the number of people with one or more disabilities.

43 The need for help may have been underestimated as some people may not have admitted needing help because of such things as a desire to remain independent, or may not have realised help was needed with a task because help had always been received with that task.

44 The criteria by which people assessed whether they had difficulty performing tasks may have varied. Comparisons may have been made with the ability of others of a similar age, or with the respondent's own ability when younger.

45 The criteria used to identify disability and disability status has not changed between 2003 and 2009.

46 The different collection methods used (personal interview for households, and administrator completed forms for cared-accommodation) may have had some effect on the reporting of need for assistance with core activities. As a result there may have been some impact on measures such as disability status. If so, this would have more impact on the older age groups because of their increased likelihood of being in aged care-accommodation.


MAKING COMPARISONS BETWEEN SURVEYS OVER TIME

47 Much of the content of the six disability surveys conducted by the ABS in 1981, 1988, 1993, 1998, 2003 and 2009 is comparable. There are differences, however, as later surveys have attempted to obtain better coverage of disability and of specific tasks and activities previously considered too sensitive for a population survey.


Changes between surveys

IDENTIFICATION OF PRIMARY CARER POPULATION

48 In 2003, primary carers were identified by asking a responsible adult to complete screening questions on behalf of the household, as to whether anyone provided assistance with communication, mobility or self-care to members of the household. The identified person was then personally interviewed and asked to confirm that the nominated recipient of that care was the person they provided the most care for. If they indicated that this was the case, they were recorded as a 'primary carer'. The person who was receiving the care did not contribute to the identification process.

49 In 2009, this identification process was expanded to include members of the household who the recipient of care identified as their main care provider.

NEW ITEMS

50 The household component of the 2009 SDAC was expanded to include the following data items about:
  • Main language spoken at home/proficiency in English

Disability services and services for the elderly/Unmet demand
  • Age at which assistance was first needed with core activities
  • Whether any organised services have been contacted for assistance with core/non-core activities in the last 12 months
  • Type of organised service contacted (Government/Private non-profit organisation/Private commercial organisation)
  • How often respondent receives assistance with core/non-core activities from organised services/partner or spouse, family, friends or neighbours
  • Whether respondent expects to receive assistance with core/non-core activities for 6 months or more from organised services/partner or spouse, family, friends or neighbours
  • Reasons respondent is not receiving (more) help from organised services
  • Whether respondent needs (more) help with core/non-core activities
  • Whether respondent needs (more) help with core/non-core activities from organised services
  • How often respondent needs (additional) help with core/non-core activities from organised services
  • Whether respondent needs (more) help with core/non-core activities from family or friends
  • How often respondent needs (additional) help with core/non-core activities from family or friends
  • Whether there are any (other) aids that the respondent needs, but does not have
  • Task(s) for which an aid is needed
  • Travelled to activities without any assistance.

Social inclusion (for people with a disability and persons aged 60 years and over)
  • Frequency of face-to-face contact with family and friends not living with respondent
  • Frequency of other forms of contact with family and friends not living with respondent
  • Ability to get support in a time of crisis
  • Source of support in a time of crisis.

Labour force participation
  • Working arrangements used to help look after someone in last 6 months
  • Period since last worked
  • Difficulties in finding work
  • Whether available to start work/work more hours in the next 4 weeks
  • Reasons not available to start work/work more hours in the next 4 weeks
  • Reasons for not wanting work/more hours
  • Whether looked for work in the last 12 months
  • Time since last looked for work
  • Main activity when not in the labour force
  • Whether wanted to work
  • Preferred hours of work
  • Arrangements required to assist primary carer to achieve a balance between work and caring arrangements
  • Reasons primary carer could not use arrangements to achieve a balance between work and caring arrangements.

Carers
  • An improved carer selection process which incorporates carers who are identified by the recipient as well as those identified by the 'initial household contact person'
  • Whether carer provides continuous or episodic care to usual resident/non-usual resident recipient
  • Whether non-usual resident recipient lives in cared-accommodation
  • Total number of hours spent each week providing care to all usual resident and non-usual resident recipients
  • Social and community participation of primary carer
  • Unmet sources of support for primary carer to help in their caring role.

CHANGES TO CLASSIFICATIONS

51 In 2006, the Australian and New Zealand Standard Classification of Occupations (ANZSCO) (cat. no. 1220.0) replaced the Australian Standard Classification of Occupations (ASCO) Second Edition, 1997 (cat. no. 1220.0) and the New Zealand Standard Classification of Occupations (NZSCO), 1999 used in Australia and New Zealand, respectively. ANZSCO provides an integrated framework for storing, organising and reporting occupation-related information.


DATA DISSEMINATION

Publications

52 Further information about SDAC including a list of data items included in the survey will be included in Disability, Ageing and Carers: User Guide, Australia, 2009 (cat. no. 4431.0.55.001), expected to be released on the ABS website in March 2011.


Results for states

53 A set of tables in a spreadsheet format equivalent to those in this publication will be produced for each state and the Australian Capital Territory (subject to standard error and confidentiality constraints and excluding time series tables). These tables will be available from the ABS website <www.abs.gov.au> from June 2011.


Data Cubes

54 All tables in this publication are also available in a Data Cube (spreadsheet format). Additional data cubes will be appended to this product between January and April 2011. These will be of similar content to the publication Survey of Disability, Ageing and Carers, Australia: A Summary of Findings, 2003 (cat. no. 4430.0). A summary publication, a consolidation of the progressive releases, will be released using the same catalogue number (4430.0) on 28 April 2011.


Microdata

55 It is expected that both a basic and an expanded confidentialised unit record file (CURF) will be produced from the SDAC, subject to the approval of the Australian Statistician. The expanded CURF will contain more detail than the basic CURF and will only be available via the Remote Access Data Laboratory (RADL), which is a secure Internet-based data query service. The basic CURF will be available via CD ROM or RADL.


Special tabulations

56 As well as releasing publications and standard products, the ABS can make available special tabulations. Special tabulations will not be available until the release of the consolidated publication on 28 April 2011.


Other products

57 This publication's Summary, these Explanatory Notes and the media release are available free of charge on the ABS website <www.abs.gov.au>.


ACKNOWLEDGMENTS

58 ABS publications draw extensively on information provided freely by individuals, businesses, governments and other organisations. Their continued cooperation is very much appreciated; without it, the wide range of statistics published by the ABS would not be available. Information received by the ABS is treated in strict confidence as required by the Census and Statistics Act 1905.


RELATED PUBLICATIONS

59 Previous ABS publications relating to disability, ageing and carers:
60 Other ABS publications which may be of interest include:

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